the fundamentals of caring disability
I’m not innocent and angelic like the disability stereotypes. It’s certainly not what I expect from my life, either. I spent the whole movie wondering “is this kid going to die?” That’s the prevailing narrative in disability-themed movies. She also wasn’t afraid to call me out on my bullshit if I was being a jerk or feeling sorry for myself. Like in the movie, most caregivers get paid a crappy wage, but in many cases, their employer won’t have control over that, because the funding comes from the state and they may not be able to afford to supplement pay out-of-pocket. They’ll be part of some of my greatest joys and worst heartaches. retired writer who becomes a caregiver after suffering a personal tragedy TTY (585) 546-7512 The bathroom scenes in “The Fundamentals of Caring” made me cheer out loud, just by virtue of them being in the film. I do have a few problems with the movie, the biggest one being that the actor playing Trevor didn’t have a disability. In fact, it was eerily similar to my life to the point where I’ll be making it highly recommended watching for new caregivers, especially people who want to travel with me. I feel like I am at the beginning of the next part of my story, too. © Oops! A man suffering a family loss enrolls in a class about care-giving that changes his perspective on life. The movie avoids the trap of stereotyping that so many others fall into. I knew what he was going to say before he said it, because let’s face it, guys are lucky they get to pee standing up. Ben (Paul Rudd), a grieving, struggling writer, takes a job as a caregiver for Trevor (Craig Roberts), an 18-year-old with Duchenne muscular dystrophy. “The Fundamentals of Caring” isn’t about an ending, it’s just the beginning. FAX (607) 936-1258, 34 Castle Street So never mind walking… I just want to flip someone the bird. Almost everything else they showed has happened to me. The bathroom scenes in “The Fundamentals of Caring” made me cheer out loud, just by virtue of them being in the film. There’s a reason my 2003 Chrysler has an “emergency bag” with duct tape, zip ties, and WD-40. But as a person who uses attendant services, I found I could relate to their portrayal of the relationship between supervisor and attendant. They’ll be helping me during the most private moments of my life. People with disabilities are portrayed as “inspirational” far too often and that whole depiction is genuinely obnoxious. Thanks to this movie, I’m definitely adding the World’s Deepest Pit, if it actually exists, to my bucket list. I really enjoyed it. She was reliable, supportive, and great fun to hang out with. But I’ve had those moments when I see somebody in a disabled parking space who doesn’t have a permit, and I really want to flip them off. TEL (607) 654-0030 It’s the first time I’ve ever seen something close to my own life reflected in the mass media. But I plan on being around for a long time, and spending every moment of my life living, getting out there and enjoying the world whenever I’ve got enough money in my bank account or my credit card isn’t maxed out. FAX (585) 546-5643, 99 Washington Ave., And yeah, we all have to go someday. The only thing they missed was showing them putting something on the van back together while stopped on the side of the road. Like Trevor, I love roadside attractions. | We people with disabilities have sexuality and desire relationships just like everyone else. I can’t wait to watch make the rest unfold! Together, they embark on a road trip to visit some of America’s weirdest roadside attractions, meet Trevor’s estranged father, and pick up hitchhikers including Dot (Selena Gomez), a romantic interest for Trevor who’s as cynical as he is. So “The Fundamentals of Caring,” with its fairly realistic portrayal of a young man in a wheelchair, is a breath of fresh air. Some want a professional who will come in, do the job, and leave so they can go about their life. Trevor’s Mom serves to remind us that attendants must often tread the line between the wishes of well-intentioned family members, and the requests of their consumers and supervisors. These seemingly surface-level exchanges lend themselves … Starring Paul Rudd, Craig Roberts, and Selena Gomez, the film had its world premiere at the Sundance Film Festival on January 29, 2016, and was released on Netflix on June 24, 2016. I’ve had some great conversations with caregivers there. Instead I can only give this vague hand gesture where my middle finger is up, but my index and ring fingers kind of are too. One of my favorite places in the world is the Buffalo Bill Cody Museum in North Platte, Nebraska. It can be a great job or it can be a shit job. I’m not innocent and angelic like the disability stereotypes. I also adore the Coney Island sideshow. Life happens, and great caregivers roll with it. Yet. But I’ve met lots of awesome people by talking to strangers and being willing to go outside my comfort zone. I’ve had some great conversations with caregivers there. It’s certainly not what I expect from my life, either. I can go to parties with friends when I choose, go to movies, work… experience life in a way that I would not be able to had I not received attendant services. But it’s reality for most of us who have disabilities. My answer to that question would be, “give somebody the finger.” Like Trevor, I can’t do it. 103 But I’ve met lots of awesome people by talking to strangers and being willing to go outside my comfort zone. Although Craig Roberts did a good job, there were some inconsistencies in Trevor’s amount of physical limitation that likely wouldn’t have occurred if he had been played by an actor with a real disability. It is through an emotional bond that Trevor learns how to speak to girls, the importance of freedom and independence and that his life could be more than just sitting at home watching television and eating waffles. Every disabled person has their own preferences and needs, and you’ll be helping them in the ways they want and need you to, not necessarily the way you were trained. I am sorry to say this, but a classroom doesn’t teach you anything about what caregiving is really like. 806b TEL (518) 320-7100 It depends partly on the person you’re caring for, but even more importantly, it depends on you and the attitude you bring to it. “Inspirational?” “Hope?” It feels like almost every film featuring a disabled character is dubbed, “inspirational,” in spite of the fact that not everything disabled people do is actually “inspirational.”. I’ve tried hiring people who are nice but with whom I have nothing in common, but it’s never worked long term. But after that, I ask myself “Is this someone I want to hang out with?” I will be spending hours with them every day. In fact, sometimes they teach things you’ll have to unlearn, like taking a purely medical approach to disability. In a world of stereotypes and discrimination, we need such portrayals to change how our society views people with disabilities. I can’t wait to watch make the rest unfold! That doesn’t make me any less of an awesome, intelligent, and funny person, just as it didn’t with Trevor. You bet. My caregivers have helped me with tasks and in situations that are nearly as crazy as what you see in the movie. When I had the opportunity to take a spontaneous road trip from California to New York City, it transformed my life. Staying in shabby motels with questionable accessibility, people lifting my power wheelchair up stairs or pushing it up a cliff-like ramp… Yep, it’s all happened. In the process, they learn to accept themselves and start living again. Although Craig Roberts did a good job, there were some inconsistencies in Trevor’s amount of physical limitation that likely wouldn’t have occurred if he had been played by an actor with a real disability. Despite this inaccurate description, The Fundamentals of Caring is not the typical inspiration porn (in which cripples are given accolades for doing things that non-disabled folks do, such as being in romantic relationships or pooping in toilets)  that we often see come out of mainstream cinema. Here are 9 ways “The Fundamentals of Caring” speaks the truth about my life with a disability. Nearly every film about disability misrepresents our lives to the point where characters who should be like us are unrecognizable to us. Apparently that was a change from the book, in which Trevor and his mom had their own van. It’s sadly refreshing that this movie was able to represent a disabled person without going down the path of the sad cripple with a terrible life narrative. Most movies shy away from the bathroom as a place too embarrassing to show. Albany, NY 12210 It’s true. TTY (518) 320-7100 So never mind walking… I just want to flip someone the bird. You know that scene in the movie when Ben asks Trevor what he would most want to do if he didn’t have a disability? She eventually saved us when we were attacked by a masked gunman in a home invasion robbery. Like in the movie, most caregivers get paid a crappy wage, but in many cases, their employer won’t have control over that, because the funding comes from the state and they may not be able to afford to supplement pay out-of-pocket. Here are 9 ways “The Fundamentals of Caring” speaks the truth about my life with a disability. The Fundamentals of Caring tells the story of Trevor who has Duchenne Muscular Dystrophy and carer Ben. But it’s reality for most of us who have disabilities. 497 State Street But none of the minor errors detracted from the message of the film, and overall I found it to be accurate in the ways that matter. Note: This article contains a few spoilers. My answer to that question would be, “give somebody the finger.” Like Trevor, I can’t do it. We can be prone to certain other illnesses and face complications from aging and surgery, but I’m more likely to die from the breast cancer that plagues my mom’s side of the family than I am from anything to do with CP. TEL (585) 546-7055 I recently had a chance to watch the new Netflix original film “The Fundamentals of Caring,” based on the novel by Jonathan Evison. They’ll be helping me during the most private moments of my life. Rochester, NY 14608 You hear “kid in a wheelchair with muscular dystrophy” and you think he’s gonna be a goner. That incident forced me to move to another state for safety reasons, but we still talk and she will always be an important person in my life. I expect to see more realistic representations of people with disabilities after this! (Spoiler alert: This blog reveals spoilers about the movie The Fundamentals of Caring. “The Fundamentals of Caring” isn’t about an ending, it’s just the beginning. But we people with disabilities, in general, spend a lot of time on the toilet, and we learn to make the best of it. […] of Girl with a Cane blog  and Karin at Freewheelin Travel blog review Netflix film, The Fundamentals of […], Free Wheelin': Traveling with a Service Dog. Nearly every film about disability misrepresents our lives to the point where characters who should be like us are unrecognizable to us.

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